15th October 2017
Yesterday Janet had a very successful fundraising day at Fulwood Methodist Church craft fair. She managed to send lots of lovely hand made bunnies off to new homes and raise £250 towards Mandy's ongoing care.
For anyone who is planning, or would still like, to participate in any fundraising please let us know as it'll all be going towards additional scans, appointments and specialised physio costs which will all be needed and appreciated!
Thanks for everyone's ongoing support 🙌✨🐇
14th October 2017
Big thanks to Jen & Co who are fundraising today with a sponsored spin at Ribby Hall Village. All the money they raise will be going towards Mandy's post-surgery care which will be ongoing for the next year. I'm sure Mandy would have loved to have joined you but she's currently working hard at having a sleep 😴 💞
5th October 2017
Mandy is feeling less good today. After yesterdays antics where we had a rare moment of fun - it has caused Mandy a restless pain filled night and subsequent painful bouts today. #druggedup 🤢😞💊🌡
3rd October 2017
We can't begin to express the gratitude both Matt and I feel for all effort and determination from every single person who has helped get me to this point. At the beginning of this crazy ride I never dreamt I would firstly have already had the surgery, secondly I would be recovering in my own home surrounded by the people who love me and finally that the entire surgery would have been paid for. You have all contributed to me starting the road to recovery and that has at times felt an impossible task. I'm ready to work hard, rest a lot and take care of myself so that I can eventually begin to enjoy the life that I have been hoping to gain a little back of.
A big thank you to Jessica for adding £150 to the fundraising as she has been busy losing 2 stone. Congratulations 🎉🌟🎉
Anyone who has any donation tins or fundraised money not yet added to the website can now be collected. We have 2 more events coming up, a spinathon at Ribby Hall held by Jen and one final get together day of fun and raffles in October organised by Janet. Every penny that is being raised from this point on is going to pay for the extensive specialist physio and rehabilitation.
28th September 2017
Hi everyone. Sorry it's taken me some time to say anything. The surgery went very well and everyone is pleased with how it all looks. I have had some post op issues because of Ehlers Danlos Syndrome which got me into this mess to begin with, medication and gastric issues, POTS problems, shy bleeding and bruising veins, swallowing and jaw problems and my body in general not playing ball. Thankfully I have had wonderful surgeons, nurses and staff who have done a brilliant job of taking care of me and ensuring that they take EDS into account when treating me. I even have had the chef prepare me special meals everyday. I will be staying here in the hospital a little longer than I anticipated but hopefully will be home by Sunday. Thank you so very much to every single person who has donated, helped, shared, and organised fundraisers, without all your support I would still be struggling along. I am so grateful to have the opportunity to be operated on in the UK, my surgeon will monitor my progress over the next year and hopefully if all goes well other EDS patients who are also suffering may have the same chance I did. I am very hopeful for my future, although I know it will take lots of time, hard work and rest.
26th September 2017
Hi everyone. Mandy has had her surgery! 🎉 We've been a little quiet to make sure everything was going to go to plan but we're 3 days post-op now and everything is going well. Mandy has been doing a little bit of physio and resting a lot while her neck heals up. We're hopeful that the surgery she has had will reduce her symptoms but the process of healing will take between 6 months and a year so we won't know for sure until then. At the least she's now a lot safer and unlikely to get any worse. Here are some pictures of Mandy's new bionic neck...
20th September 2017
Thanks to a couple of people who have been looking after our collection boxes over the last few weeks. Natalie and her salon have raised £51 and Carice and The Hatters Cafe have raised £20. Thank you! x
10th September 2017
You guys are still busy, and we have a few people to thank today. Barton and Vanessa have been at it again, raising money with some of their friends with a performance of a comedy play 'Separate Beds'. Family members Peter, Ruth and Dot have been continuing their support, enlisting their friends to help us out. And thank you to some of our collection box hosts: Newton Shop, Trendies and The Saddle who have been supporting us throughout.
Thanks all we are very grateful for all your hard work 💜
25th August 2017
Thanks Mary, The Penguins and friends for organising what sounded like an excellent night of entertainment and dancing. They raised around £800 and had a boat load of fun. Thank you to everyone that went and all those who helped to organise and perform! 💃
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24th August 2017
Thanks to Angela and Team Mandy at MMU for their very tasty looking bake sale. They raised £230 and helped many people hit their sugar quota for the day 🍰🍩🍪🎂🥧🎉